Polish English Jakub Szybiak

Let's beat SMA together



The struggle continues!

Added on the 28th of March 2018 at 14:50

Since the appearance of the first effective drug for spinal muscular atrophy, my biggest dream was to qualify for the treatment, which has become my only chance to live ... Today I am already after four doses of the drug and I am getting stronger! My dream came true on December 5, 2017! It was on this day that I got the first dose of a breakthrough drug called Nusinersen as part of a further study of the medicine carried out in Belgium on people with the first type of SMA. Nusinersen is a drug that is able to effectively stop the progress ...